Monday, December 15, 2014
Ebola demands our full attention
The cheery and
intelligent man who operates our local dry cleaning agency and I often chat. He
has a son doing medicine, and last week, he was worried about Ebola.
He feared that casual
contact in his shop or, in the case of his son, on the wards might lead to the
disease.
It made me realise
that it is easy to overestimate community understanding of the basic facts
about Ebola.
Not that as health
professionals we know all there is to know about it - even the precise details
of its transmission are uncertain - but sharing what we do know can help the
public manage its anxiety.
And quality vigilance
depends on good intelligence. So what do we know? The first good thing - and
there are not many - is that over half the people who contract it recover.
It is less certain how
recovery occurs and whether classic principles of immunity apply, but a 50%
recovery rate is a lot better than we saw with HIV in the early years.
Medical care also
helps. Fluid replacement and intensive care make a difference to survival
chances.
Second, the disease
thus far appears to spread through blood, sweat and other body fluids,
especially the excreta of infected people, to those who touch them during life
or death. Airborne transmission has not been documented.
In theory, this means
that enhanced infection control procedures can protect family and health
professionals.
However, as of the end
of October, about 500 healthcare workers had contracted Ebola and half of them
had died, so protection as practised at present is far from perfect.
Third, we live in an
age of brilliant technological possibility, so the search for a drug to treat
Ebola or a vaccine to prevent it is likely to yield dividends quickly.
The most likely
limits, with so few cases, will be political and economic, as the cost of
developing a drug or vaccine may not be a good commercial deal. But the
accolades that would come to the inventor of a drug or vaccine would be great.
Furthermore,
technological fixes are not always expensive. As reported in the 27 October
issue of the New Yorker, a recent competition run by Columbia University
yielded several inexpensive innovations designed to assist in managing Ebola.
The competition,
auspiced by the schools of public health, and engineering and applied sciences,
was open to all students and faculty. Among them was an inexpensive hose that
sprayed bleach foam rather than a solution, because unlike a bleach solution,
with foam you can see where it has been sprayed.
But there are
significant endemic barriers to combating the virus in West Africa.
The impoverishment of
the countries where Ebola has become an epidemic is a major limitation, both in
the treatment of those with the disease and the control of its spread.
Poverty means fewer
healthcare facilities and medical supplies, which is why the military support
offered by the US, with its sophisticated logistic capability, will make a huge
contribution.
Last month, 4000 US
troops with cargo planes stuffed with all necessary equipment and transport were
deployed to Monrovia in Liberia as part of Operation United Assistance.
With that as a
background, groups such as Médecins Sans Frontières and other NGOs' efforts
will be enhanced by field hospitals and supply lines for IV fluids and material
needed to care for Ebola patients.
Medical volunteers
from Australia are also contributing to the Ebola effort - including
supporting diagnostic laboratories that are hard-pressed to keep up in the
affected countries, and are working with MSF and the Red Cross on the front
line.
This month, the
Federal Government pledged $20 million in funds for the private healthcare
company Aspen Medical to operate a 100-bed hospital in Sierra Leone that will
be run by 240 healthcare staff, some of whom will be Australian.
The move came after
weeks of public accusations by the AMA and NGOs that the government was not
doing enough.
However, until
effective treatment and infection control measures are more widely implemented
in Africa, the course of the epidemic is hard to predict.
I understand that the
mutagenic potential of the Ebola virus is no match for influenza, but if its
mode of transmission does expand to include airborne routes, the challenge of
the epidemic would grow enormously.
Figures published by
the US Centers for Disease Control and Prevention say almost 5000 people in
West Africa have died from the virus, with the number of cases in Sierra Leone
and Liberia said to be doubling every 20 days, which means that by year's end,
those affected will be approaching 1.4 million.
It is clear Ebola
deserves our serious attention: just as we view the extremist Islamic State as
a distant threat to Australian security, so too we should view
Ebola.
As for my friend the
dry cleaner, when he asked if he should wash his hands after handling
unfamiliar garments, my cautious (but not entirely rational) answer was, yes.
Professor Leeder is a member of the Menzies
Centre for Health Policy at the University of Sydney, chair of the Western
Sydney Local Health District Board and editor-in-chief of the Medical Journal
of Australia.
Published in Australian Doctor 17 November, 2014 http://bit.ly/16p4FTz
Stronger focus on drug side effects needed
Randomised controlled
trials are the supreme method for determining whether a new treatment,
frequently a new pharmaceutical, is superior to current best practice.
They were originally
used in agriculture to assess the added value of a new plant or soil additive,
but are now firmly ingrained in medical practice.
I recall 30 years ago,
an eminent professor of surgery railing against randomised controlled trials,
which he considered utterly inappropriate to determine the value of surgical
interventions.
He wrote a scathing
article in which he referred repeatedly and disparagingly to such trials as
"agricultural statistics".
While the randomised
controlled trial has given us the best possible evidence about the effects of
new therapies for a range of conditions, especially cancer and cardiovascular
disease, and have underpinned the evidence-based medicine movement, they do not
cover the entire treatment waterfront. This is especially so in relation to
side effects.
The way randomised
controlled trials work is that they aim to find out how many patients need to
be treated — either with the new therapy or the old — to determine if the new
drug is better.
The expected
improvement in cancer trials is small, usually less than 10%, and so these
studies require larger numbers of patients to be sure that even the slightest
difference in outcome can be seen.
Sample size
calculations, therefore, are based on the detection of relatively rare events,
such as a gain in life expectancy or quality of life.
But side effects are
another matter. They often fall beyond the vision of the trial, or out of focus
of its carefully calculated sample size.
Side effects may not
occur for months or years after a trial has finished, or they may be so rare
that the randomised controlled trial's sample size is insufficient to detect
them, even if they occur during the trial.
With some medications,
side effects are of huge importance — for example, if the trial is testing a
preventive intervention such as immunisation, rather than a treatment for a
serious illness where side effects may be tolerated.
Nobody wants to enter
a trial feeling whole and well and leave it with a nasty side effect.
Publicity around
claims of side effects from immunisation illustrate this point, and show how
critical it is to be secure about the proposed preventive interventions.
Similar concerns
surround trials of cholesterol-lowering drugs in very low-risk populations.
Side effects can be hard to detect, and if the treated trial subjects are at
low risk of the disease (such as an MI) that the drug is intended to reduce but
then develop problems with, for example, muscle power, a hard-to-resolve
problem arises. Witness the controversy around the Catalyst TV programs
on exactly this topic.
So there is a sizeable
challenge to be sure that we know what side effects occur, and brilliant
randomised controlled trials will not necessarily tell us about rare and
distant ones.
Currently, especially
in the case of new drugs, the pharmaceutical company sponsoring the trial will
have given serious thought to this matter and have in place systems to collect
information about side effects.
Of course, it is not
only in the context of randomised controlled trials that side effects occur and
old remedies, especially in specific genetic subsets of the population, may
cause rare problems. Often more information, especially long-term data, is
needed.
An intelligence system
to learn about possible side effects is far more feasible today than even 10
years ago.
The high degree of
electronic connectivity that we all enjoy (and sometimes loathe) can put us in
touch with agencies, such as the TGA, to report possible side effects at the
click of a mouse.
Now the TGA has come
up with an online reporting system for patients as it's concerned that the vast majority of
side effects go unreported. Doctors report some and drug companies others, but
for over-the-counter and alternative medicines, there have been no formal
reporting pathways.
The TGA may easily be
overwhelmed with side effect noise and it will need a good filtering system to
detect the signals. But this is surely a move in the right direction; another
step to ensure medication safety as well as efficacy as we continue to advance
our capacity to prevent and to treat.
Professor Leeder is a member of the Menzies
Centre for Health Policy at the University of Sydney, chair of the Western
Sydney Local Health District Board and editor-in-chief of the Medical Journal of Australia.
Published in Australian Doctor 8 October 2014 http://bit.ly/1BRzk91Monday, September 22, 2014
How should we respond to the Ebola virus threat?
We Australians live in an exceptionally safe country compared
with many others today (and compared with our own in times gone by) when it
comes to serious infectious diseases.
Our immunisation programs have succeeded brilliantly against
whooping cough, polio and the other diseases of childhood.
The basics of public health -- clean water and waste disposal --
are secure in urban and much of rural Australia. Huge gains in life expectancy
have followed.
We no longer need the rituals and beliefs to comfort us as did
families in Victorian England when the death of children from infections was
commonplace. We are not a society facing the loss of 16 million deaths of
combatants and civilians as happened in World War I, followed by about 50
million more who lost their lives from the larger scourge of H1N1 influenza in
1918.
Being unaccustomed to catastrophe, especially those due to
infections, it is understandable that we are shocked and frightened by the
current outbreak of Ebola virus in West Africa.
Well, even if we aren't ourselves, then at least a friend of
mine is. This man, a retired, successful and highly intelligent businessman
living in the north-east of the US, recently cancelled his summer holiday in
the south of France.
You can read about the fascinating history and virology of Ebola on
Wikipedia. The virus was named after the river in the Democratic Republic of
the Congo (then Zaire) where it was first isolated in 1976. The current
outbreak in West Africa is the first recorded for that area.
On 8 August, the WHO declared the outbreak to be an
international public health emergency.
As of 21 August, the WHO reported there had been 2473 cases of
Ebola virus in places such as Guinea, Liberia, Nigeria, and Sierra Leone, and
1350 people had died from the disease.
Infectious agents can kill in epidemics by being highly lethal
and highly contagious. Highly lethal infections that are not contagious do not
create epidemics.
Viruses that spread by airborne droplets such as influenza are
highly contagious, but many forms of flu are benign because their pathogenicity
is low.
It is only when a strain of influenza that has high lethality
and is highly contagious -- such as the H1N1 influenza that followed World War
I -- is circulating abroad that serious flu epidemics occur.
In the case of Ebola, there is high lethality associated with
human infection. About half of the reported cases see the patient die due to
massive cytokine disruptions to the vascular tree. But bodily contact, or
contact with bodily fluids, is necessary for infection.
The Ebola virus does not mutate rapidly -- it's 100 times slower
than influenza A and about the same as hepatitis B. If we could develop a
vaccine, it would not be quickly out-of-date.
So what should we, in Australia, do? First, we need to ensure
our surveillance strategies are sound and in place, concentrating especially on
plane arrivals of people from West Africa.
Second, we need quarantined treatment facilities available to
effectively manage cases.
Two US medical attendants, Kent Brantly and Nancy Writebol, who
were exposed to Ebola while treating patients in Liberia were repatriated by
air on 2 August to a special facility at Emory Hospital in Atlanta, built with
the Centers for Disease Control. The US is thus taking seriously the
possibility of treating patients with Ebola on its shores. So should we.
Third, we should, as a nation, contribute what we can to the
advancement of scientific understanding of this threat, with an eye on
antiviral therapy and vaccine development.
Australia's response has been appropriate to date, but we still
do not have a national centre for disease control.
The surveillance networks that we have are generally adequate,
but relatively informal and for a nation of our wealth, aspiring to
international leadership, 'adequate' is not the word that comes to mind as an
expression of appropriate ambition or responsiveness.
Professor
Leeder is a member of the Menzies Centre for Health Policy at the University of
Sydney, chair of the Western Sydney Local Health District Board, and
editor-in-chief of the Medical Journal of
Australia.
Published in Australian Doctor 26 July 2014 http://bit.ly/ZEx5FW
Thursday, September 11, 2014
WHY CO-PAYMENTS ARE NOT ALL GOOD
In
celebrating the one-year survival of the Abbott government former prime
minister John Howard was reported to have asked why, if we have co-payments on
pharmaceuticals, we should not have one on general practice. Five reasons stand
out.
First,
the co-pays on prescription drugs stop poorer people from accessing to them.
Ask general practitioners. Extending co-pays to general practice compounds
rather than solves this problem.
Second,
seeing a doctor for a health worry is different to filling a script. A
consultation with a doctor may dissipate the worry without further cost or
action.
Third,
a timely, uninhibited consultation for the first symptom – chest pain, let’s
say – of a serious problem may save a life and nip the progress of a disabling
illness. Co-payments diminish easy access for less affluent Australians to
general practice
Fourth,
a consultation may lead to preventive changes – quitting smoking, behaviour
modification, stopping unnecessary medications – that are positive investments,
not sunk costs. Co-pays that inhibit
preventive consultations diminish the chance of a healthy life.
Fifth,
many general practitioners in poorer parts of the country who entirely
bulk-bill do not have the financial systems to raise fees. The logistics of collecting and remitting a
co-payment could drive them out of business.
Maybe
the co-pays on pharmaceuticals are a public policy error that permits gouging
of pharmaceutical prices and diminishes the search for efficiency in drug
supply. Rather than asking where else we can impose a co-payment, the question
should be, “We don’t have co-payments on general practitioner bulk-billed
consultations, so why should we have them on prescribed pharmaceuticals?’
By
way of postscript, the current debate about how much the Medicare levy
contributes to health care costs is informed by figures from the federal
minister that are all wrong.
ASSESSING VALUE BEFORE DEMOLISHING
In the current confusion in health that has followed from a
swath of defunding, abolitions, co-payments and diminished Commonwealth funding,
it is easy to lose sight of the needs of the individual patient.
Typically and increasingly, the people who need our health care
have a combination of problems such as diabetes and heart disease requiring concerted
attention from hospitals, community nurses, general practitioners and
community-based specialists. We do not have the firm evidence to say how best
to do this, and hence in NSW the state minister for health, Jillian Skinner,
has allocated $130m over 3 years to test out alternate ways of achieving this
end. Recently Medibank Private and other
private insurers have expressed interest in testing strategies using community
nurses to achieve the best alignment of care for our typical patient.
One of the casualties of the federal slashing has been what
was called a Medicare Local, an organisation established by the previous government
to create an environment of support for general practitioners and the long-term
care of patients with chronic problems.
Their function was patchy, as expected from new entities, but where they
worked they worked well. But the decision was taken recently to scrap all 61
and start again, with different, fewer entities called primary health
networks. Demolition and rebuilding is
an expensive hobby.
In NSW, where we have 17 hospital districts or networks,
there were 16 Medicare Locals. While the
match was imperfect, you get the drift.
In places such as western Sydney, fortune favoured us and the Medicare
Local and the hospital district covered the same geographic area – from Mt
Druitt to the Hills to Parramatta and Auburn.
Good things followed in coordinating care and hospitals and community
practitioners learning to work together – for the good of the patient.
The document that evaluates the Medicare Locals concedes the
value of a one-on-one relationship but envisions larger organisations combining
the roles of smaller Medicare Locals.
What a pity. We know from past experience that the size of the NSW
health districts is just about optimal – make them bigger and they are a
managerial nightmare; make them smaller and you lose economy of scale. Each has a degree of local identity and that
identity is reflected in the Medicare Locals that serve the community especially
when the overlap is complete.
If the federal minister wishes to experiment with how to
meet the needs of the patient with chronic problems, why not leave NSW as it is
and try out different models in other states such as Victoria that has no fewer
than 90 hospital networks. Or
Queensland. He has encouraged private insurers
to experiment so why not his own ministry?
Tearing up the crop before it has had a chance to bear fruit
is expensive and wasteful. Even more so
with Medicare Locals. Of course many of
them can benefit from more energetic and focussed management, but there is no
monopoly on that. Let the plants grow. We’ll find out soon enough whether the NSW
model – one Medicare Local per hospital network – is the best way to go or
whether we have been trumped by the Victorians again.
Tuesday, August 26, 2014
Tuesday, August 19, 2014
THE FUTURE OF MEDICARE AND MEDICARE LOCALS
The
Conversation Conference
August 13th
2014
Recently-announced
proposed budget changes bear heavily on the future of Medicare and Medicare
Locals (MLs).
The
element in the budget that I wish to concentrate upon today is what’s happening
with the 61 Medicare Locals. I
have been asked to address three questions:
- The argument for ML reform - what has and hasn’t worked and what changes are needed?
- Will the reform of MLs work or will abolition be the only answer?
- What do we see internationally that could be applied within Australia to alleviate the problems with MLs?
MLs
have been reviewed both with regard to their function by John Horvath and
specifically with regard to financial management by Deloitte.
As
one might predict, the financial management of these entities was found to be immature
and often below par. As well, much diversity of competence and performance was
found in function among the MLs. General practitioners complained about being
excluded from MLs. Some feared
that they will take over their work.
In
any case the reviews proposed abolishing MLs and replacing them with Primary
Health Networks – PHNs – that have rather similar functions. Although the reviews proposed there
should be fewer PHNs than MLs, it emphasised the value of having MLs and Local
Health Districts – LHDs – or Local Hospital Networks – LHNs – relate closely to
one another. Contiguity was seen
as a virtue. How this will happen
is not clear. In NSW we have at
present 17 MLs and 17 LHDs. As John Horvath
observed in his review “to be effective, boundary alignment with Local Hospital
Networks (LHNs) is critical for engagement” but of course this will not be
possible at the PHN level unless there are more, not fewer, PHNs than there
were MLs.
Perhaps to overcome the mismatch
between PHN and LHNs, each PHN will have a board, informed by a Clinical
Council and a Community Committee for each LHN. These committees will oversee the functions that MLs provide
at present though it is clear that PHNs will not have a service role other than
exceptionally. The Clinical
Council is intended to give strong voice to general practitioners who
reportedly have felt excluded from many MLs.
A transition to PHNs may not involve
much change providing they remain the same size as the MLs. In Victoria where there are 90 or so
LHNs, things are not clear. In any case funding to MLs will cease next year. As John Horvath says in his report, “The role of the PHN is to work with
general practitioners, private specialists, LHNs/LHDs, private hospitals, aged
care facilities, Indigenous health services, NGOs and other providers to establish
clinical pathways of care that arise from the needs of patients (not
organisations) that will necessarily cross over sectors to improve patient
outcomes.”
The
argument for a name change is quite acceptable. ML is confusing.
The argument for abolition and then reconstruction rather than managing
the process of development of laggard MLs and learning from the ones that are
going well is less obvious. There
is no contestable policy visible, just a budget statement.
What
has worked? In western Sydney the
Western Sydney Local Health District (LHD) whose board I chair has worked with
the ML on six projects and has another important one under way. The ML does not
itself provide the service.
Rather, it coordinates and manages the players.
Indeed,
the function that the ML has proved most useful in managing in partnership with
the LHD is the increasing load of people with multiple serious and continuing
illnesses has been to link their care between hospital and community.
Our
district encompasses a population of nearly one million people, 40% of whom
were born overseas. We include
Parramatta, Auburn, and Westmead, Blacktown and Mt Druitt and all places in
between. We have our share of
older people and those living with economic disadvantage. There are three major hospitals – Blacktown
Mt Druitt – BMDH – Auburn and Westmead (WH), WH being the largest and BMDH
being redeveloped to become a major tertiary centre. Lots of hospital admissions are of people in crisis with
their chronic illnesses.
With
special sponsorship from NSW Health we are currently constructing integrated
care programs for people with a chronic health problem – heart failure, chronic
emphysema or diabetes. We are
doing this in partnership with our ML.
We are devising ways to centre care on the patient by brining into
formal relationship general practice, community health services, hospital
out-patient and community specialist acre and hospital inpatient services.
This
is aided by limited use of electronic records. It depends on good will and negotiation. It also depends on formal affiliations
between the ML and LHD because our sources of funding are different.
These
projects do not account for all that the ML does. For example it has also helped organise out of hours general
practice services in western Sydney and has partnered several prevention
programs. It is active as a provider of continuing education for general
practitioners and those in training.
Is abolition of the MLs essential?
There
has been no recent suggestion to reform MLs, just abolish them. Any restructuring in the health service
comes at a huge cost and serious disruption and that should be factored into
the argument for it.
I
am not as familiar with all aspects of the performance of MLs as the review
committees, but I am surprised that the proposal for abolition and then construction
of a group of organisations of roughly the same function was not available for
contest before it became an edict in the budget. I personally don’t think that the function of the MLs
warranted wholesale abolition. They were young and we had hardly a chance to
establish them. That is my point of view.
I could be wrong, of course.
But
the move to PHNs will be expensive and now we have private health insurers
wishing to contract with the federal government to provide PHN services. How this will serve public patients is
unclear. It is true that in the US
managed care transacted by private insurers has often achieved good outcomes
for integrated service delivery. But I cannot see how that could be provided in
Australia with its divided financial arrangements between states and
commonwealth, public and private patients.
So,
to western Sydney. Our district
encompasses a population of nearly one million people, 40% of whom were born
overseas. We include Parramatta,
Auburn, and Westmead, Blacktown and Mt Druitt and all places in between. We have our share of older people and
those living with economic disadvantage.
There are three major hospitals – BMD, Auburn and Westmead, WH being the
largest and BMDH being redeveloped to become a major tertiary centre. Lots of hospital admissions are of
people in crisis with their chronic illness. Before the ML there were active Divisions of General
Practice.
With
special sponsorship from NSW Health we are currently constructing integrated
care programs for people with a chronic health problem – heart failure, chronic
emphysema or diabetes. We are
doing this in partnership with our ML.
We are devising ways to centre care on the patient by brining into
formal relationship general practice, community health services, hospital out-patient
and community specialist
acre and hospital inpatient services.
This
is aided by limited use of electronic records. It depends on good will and negotiation. It also depends on formal affiliations
between the ML and LHD because our sources of funding are different. The features of this relationship
that have meant it is a success so far as it has developed that I can identify
include:
1. Managerial commitment and
compatible, mature personalities of the executives of both LHD and ML – both
share a belief that collaboration is feasible and desirable and a common goal of
contributing to the health of the district.
2. Overlapping geography.
This is important in preventing dual loyalties and administrative confusion.
There is no space for playing one master LHD or ML off against another.
Although successes have been achieved in some MLs where there are more
than one per LHD, reports of conflicts and sub-optimal performance are
common. We lobbied hard to have
the ML boundaries set to be the same as those of the LHD and have never
regretted it.
3. A common foe – the rising tide of chronic
illness.
Has this arrangement been optimal?
When it comes to integrated care the answer is no, because factors we know to
be critical in the achievement of integrated care are missing. But whether this is
ground enough for abolition – especially when the proposed replacement does
not, it seems to me, promise more that would enable truly integrated care to be
provided – is extremely thin.
International
models of relevance to MLs and PHNs.
If we take the fundamental task of
MLs or PHNs to be to integrate care for patients with chronic illnesses, then
we should look at overseas models.
Where integrated care works to reduce inappropriate use of hospitals
there is one payer as at Kaiser Permanente’s managed care for six million
Californians, and many of the McKinsey-supported projects in the US and the UK.
Complete electronic data systems are used to assess clinical performance and
health outcomes, guidelines and a keen interest is expressed in professional
standards for all practitioners, with rewards and sanctions for achievement or
non-compliance. The Veterans Affairs services in Australia bear close scrutiny
as a model in this regard. Pull
any of these pieces out of the integrated care structure and the whole thing
collapses. I know of no examples
of successful
integrated care that have been unmanaged.
We have none of these necessary
arrangements. These qualities of
successful integrated care are not within the power of general practice or a ML
or PHN to achieve whether embedded in a Commonwealth-funded arrangement or a
private insurance set-up given the way Australia funds health care though
separate silos. The initiatives
needed to change this belong with the major state and federal health
bureaucracies.
It is true that growing interest has been expressed by
private health insurers in the PHNs and where they might play a role. For example, Medibank and the WA and
Victorian governments have proposed a trial of intensive care coordination 3000
patients with complex and chronic health problems. 2000 of the patients would
be covered by Medicare and 1000 would in addition be privately insured. Community nurses would ensure all
patients are seen by their general practitioner within seven days of hospital
discharge. The interventions
proposed have elements found in most efforts to integrate care and are not
dissimilar to those found partially in many MLs. It is not clear whether the
proposals can extent to what is successful in Australia through the VA or in
the US through managed care.
So we have the foundations through
the LHD-ML liaison to provide more appropriate care for people with chronic
illnesses but no superstructure.
To drive towards optimality requires a common funding stream, tighter
management of the process and a set of quality performance goals that carry
incentives and sanctions.
These features are recurrent in the
successful models of integrated care with which McKinsey and Co, a consultancy,
have established in the US, England and Europe. They are similar to what the King’s Fund, a health service
think tank, in London also articulate, though in the NHS integrated care has
not worked as well as hoped. Tough,
but if you want it to work, observe what the ingredients are where it does
work.
The
way forward
Integrated
care is a necessary revision to the current model of disjointed care because
chronic illness is coming to dominate our health care agenda and this cannot be
done with optimal success when components of care are disconnected.
In
moving to PHNs to replace Medicare Locals we can expect a year or more of
disruption due to transitions and it remains to be seen what management
assistance will be provided to the agencies, presumably including private
insurers and existing successful MLs and maybe even LHDs/LHNs that contest to
provide the services of a PHN.
The
positive thing is that the need for integration is clearly recognised as is the
role of the general practitioner.
These are good omens. I do
not know what process the federal government proposes to use to implement its
approach to PHNs – we can only wait and see. This is not an era in our political history where policy –
either its formation or action that might be based on it – is obvious or
strong. But we can hope that gains
made by many fledgling MLs will not be lost.
A
call to action in the July 26 edition of the Lancet is especially apposite. “Primary care needs to be reshaped to truly function as the
most important pillar for people-centred health and well-being in the 21st
century. Primary care leadership needs to wake up and start a revolution.”
Tuesday, July 29, 2014
Is an annual GP fee the answer to paying for healthcare?
The uproar over the proposed $7 co-payment for bulk-billed
general practice visits and pathology services raises questions about how we
pay for healthcare more generally.
But serious discussion is urgently needed in regard to the
billions that comprise the cake, rather than the thin icing of the new impost.
While I do it frequently, in my heart I know that there is
little point in lamenting that Australia does not have a unified health
financing system. It simply doesn't.
With the UK's NHS and managed care systems in the US such as
Kaiser Permanente, the entire health budget is managed by a single health
authority that can move money to where it is most effectively employed:
hospital or community, prevention or care, private or public.
Instead, we in Australia have these compartments that each have
their own lives to live, more or less independently. While that's not quite
true, it is close enough.
Given the improbability of Australia shifting within the
foreseeable future to a unified system of healthcare financing, we need to find
small, doable things that achieve efficiencies (which, when defined properly
mean effectiveness gains as well) where we can act.
A decade ago, I heard senior health service manager Dr Katherine
McGrath, now consultant at KM Health Consulting Services, suggest that, given
the rising tide of chronic illnesses that require continuing community-based
care, it would be wise to consider a better way of funding services for these
patients in general practice.
She suggested that an annual fee could be struck that would
cover all the services provided by a GP.
Average fees are exactly that -- patients may require more or
less service than the fee would cover but the end result should be even.
Of course, payment on this basis could be gamed, at least in
theory, but there is hardly anything unique about that.
More positively, an annual fee might help those GPs who wish to
develop and implement a preventive plan with their patients experiencing
serious and continuing problems to do so.
Such a system could give more clinical freedom for the GP.
Dr McGrath made a second point: episodic, acute care is
demonstrably well-managed within a fee-for-service system.
Occasional use of general practice would not need a system of
payment based on repeated visits. Immunisation, common infections, even minor
psychological upsets do not need continuing care.
"An
annual fee might help those GPs who wish to develop and implement a preventive
plan with their patients experiencing serious and continuing problems to do
so."
The fee-for-service element of Medicare would remain unchanged.
This hybrid arrangement may be politically workable. A change to
annual fee-for-service for chronically ill patients would need careful scrutiny
to ensure that unforeseen side effects don't mean that it is more trouble than
it is worth.
Such a proposal was advanced three years ago for the management
of patients with diabetes in Australia and the results of pilot testing have
not yet appeared.
The development of this method of payment would need careful
handling and would be unlikely to succeed if imposed from above.
But it might enable the development of different ways of caring
for these people, based more on their needs than now, with flexible
arrangements about how they could be seen and when.
For example, a special channel for patients with chronic
problems might be opened in a general practice where they simply turn up if
they need help or reassurance.
It is possible that practice nurses and others could play an
expanded role in their care. Recent US studies on the medical home -- a form of
patient-centred general practice -- have been encouraging.
The debate about how much a patient pays at the time of
receiving care vs how much they pay through their taxes when they are well will
not solve our current set of healthcare financing challenges.
The current administration of Medicare is already dauntingly
complex and the co-payment will add to that complexity.
We need to test new ways of paying for care in the community for
patients with serious and continuing illness.
These forms of payment will serve patients and the profession
best if they stimulate improved ways of providing care in continuity, new ways that
come from imaginative thinking by the doctors who provide this care.
Their
leadership is essential.
Professor Leeder is a member of the Menzies Centre for Health Policy at the University of Sydney, chair of the Western Sydney Local Health District Board and editor-in-chief of the Medical Journal of Australia.
Professor Leeder is a member of the Menzies Centre for Health Policy at the University of Sydney, chair of the Western Sydney Local Health District Board and editor-in-chief of the Medical Journal of Australia.
Published Australian Doctor, 23 July 2014.
Tuesday, July 15, 2014
MJA CENTENARY – OPENING ADDRESS
Stephen R.
Leeder
Editor-in-Chief
July 4th 2014
The University of Sydney Great Hall
Welcome
This is a grand day and one to be
savoured. I am delighted to
welcome you to the University of Sydney for this centenary celebration. I thank
deputy vice-chancellor Professor Shane Houston for his warm and dignified
welcome on behalf of the original custodians of this land, the Gadigal people
of the Eora nation.
I also welcome Associate
Professor Brian Owler, national president of the AMA, his predescessor Dr Steve
Hambleton, Ms Anne Trimmer, secretary-general of the AMA and Ms Jae Redden,
general manager of AMPCo. I also want to acknowledge my editorial, journalist and production colleagues from the Journal and from MJAInSight, and our support staff in commercial development, human
resources, finance, business development and information technology who work
together to make the Journal a
success.
I acknowledge members of our
Editorial Advisory Committee who give us strong and careful guidance and to our
many colleagues who send material to us, our reviewers and our commercial
sponsors. I also thank our
splendid array of distinguished presenters.
I am immensely grateful to Dr
Richard Smith, a former editor of the British
Medical Journal who has
demonstrated in his subsequent global health career that there really is life
after being an editor, who comes as our master of ceremonies for today’s
symposium and this evening’s dinner.
Richard will shortly describe to us the order of proceedings.
The organisation of today has
involved a joint effort by many members of our MJA team, especially Zane Colling and Mel Livingstone. Denise
Broeren of Think Business Events, Laissez-faire Catering and DJW Projects for
AV also deserve great appreciation.
And finally I want to acknowledge and thank our sponsors who have been
generous in their support.
Origins
I want first to speak briefly about
our origins as a journal then mention several high impact papers that the Journal has published, then consider
what one hundred years of Journal
publication means beyond the effects
of individual papers. I will
conclude with a glimpse of where I believe the Journal is headed.
When I was approached about the
editorship of the Journal 18 months
ago, Steve Hambleton, who was then national president of the AMA and chair of
the board of the publishing company, talked with me about an event to mark the one hundredth birthday
of the Journal.
I have wondered whether in
approaching me Steve had in mind that I was of an age where I had a natural
empathy for older things. Indeed I can boast of having read and contributed to
the MJA for half its one hundred
years – admittedly the latter half – so it’s true that I know a bit about
it.
The Medical Journal of Australia emerged in 1914. We can thank Dr
Cumpston, the father of public health in Australia, whose achievements are
celebrated in a wonderful book by Milton Lewis, the editor of our centenary
supplement, for providing a short history of the ten principal forerunners of
the MJA between 1846 and 1914. These
were attempts to foster communication among the medical profession in the
colonies. The Australian Medical Journal,
the MJA’s immediate forerunner,
operated impressively from 1856 to 1914.
Cumpston notes that in the
absence of a medical Journal, medicos
had to resort to newspapers to publish their views. He refers to an article
published 110 years before the first issue of the MJA in the October 14, 1804 edition of, The Sydney Gazette and New South Wales Advertiser Australia’s first
newspaper.
The article was by one Dr Thomas
Jamison and was the first on a medical subject published in the public press of
Australia. Dr Jamison had a lot to
say about smallpox vaccination in Australia. He admonished parents who mistook chickenpox for
smallpox. “There is no smallpox here”,
he said, “save for few cases spread among the natives by French ships anchored
in Botany Bay”.
But he warned that it could come
and ‘carry off nine-tenths of those affected’. “Look at the Cape of Good Hope”,
he said, “on the same latitude as Australia, where smallpox is rife.” He urged parents to have their children
vaccinated because “the preventive qualities of the Cow Pock are
incontrovertibly established; [and] it is attended by no sort of danger or
external blemish.”
”Therefore,” he thundered, (quote)
“should parents delay to embrace the salutary benefit now tendered gratuitously
and the vaccine be lost, the most distressing reprehensibility may accrue to them
for their remissness in the preservation of their offspring, whose destruction
heretofore may be reasonably apprehended to ensue from the smallpox should it
ever visit this colony in a natural state.” This is a style cultivated by
relative few contributors to the MJA
today. Jamison’s letter is able to
be viewed in the University of Sydney Fisher Library archives.
Editors
I stand
before you, the 16th regeneration not of Dr Who but of the editor of
the Medical Journal of Australia. The
first three Doctors occupied 63 years of editorship. and passed the torch to the
13 of us who have followed. But the
13 who followed, rather like the Australian cricket team often is in India,
have not lasted long save for Martyn Van Der Weyden, who was a wag in the tail
of the team, so to speak, for 15 years.
My immediate predescessor Annette Katelaris was editor for eleven
months. Her contribution was both controversial and transformative.
High-impact publications
How
should we judge the effect of the Journal?
The social media savvy amongst us will know that clout is measured by clicks. For
example MJA.com.au averages 400,000 clicks
per month and nearly 200,000 from clickers who click and stick to read.
But citations remain the royal currency in Journals. In our centenary issue of the MJA, Dr Diana McKay, one of our medical editors, used the Web of
Science citation analysis tool to examine popularity of articles published in
the MJA from 1949 to 2014 by
citation.
Safety
First
ranked is the 1995 Quality in Australian
Health Care Study by Ross Wilson, Bill Runciman, Bob Gibberd, Bernie Towler
and John Hamilton, a reprint of which you will find in your symposium satchel. I
am delighted that Bill and John are with us today. I have heard them both lecturing recently and twenty years
has only improved their vintage.
Their
paper demonstrated the shocking potential and moral imperative to improve the
quality and safety of hospital care. It prompted the Australian Government to form
the Australian Commission on Safety and
Quality in Health Care launched in 2006. The Commission’s recommendations
were written into legislation with the National
Health Reform Act 2011. The paper also ignited international interest with
replications of the study internationally, including by the WHO in developing
countries.
Ulcers
Ranked
2nd and 3rd are two papers by Barry Marshall, a Nobel
Prize-winner, on pyloric Campylobacter.
In our
Centenary issue, Barry Marshall reflects on his work in an article titled “What
does H pylori taste like?” He
describes “the deliberate self-administration of Helicobacter pylori and the observation that it caused an acute
upper gastrointestinal illness with vomiting, halitosis and an underlying
achlorhydria.”
He remembers
the audacity of my predecessor as editor, Alistair Brass, and being (quote) “impressed
by how far the MJA Editor was
‘sticking his neck out’ in allowing me to publish a hypothesis as to the cause
of peptic ulcer”. Both of them lauded and lamented the beating the paper took
from reviewers to get it into its final published form.
Lithium
The next most popular paper is
probably the most widely recognised, described once as a “jewel in the crown”
of the MJA. Professor John Cade’s
article “Lithium salts in the treatment of psychotic excitement”, published in 1949,
held the Journal’s most-cited paper position
for decades. To this day, lithium retains “its royal status in clinical
practice guidelines”. Gin Mahli, a Sydney psychiatrist, writes. “Lithium is
arguably the best agent for the most critical phase of bipolar disorder, long
term prophylaxis and as such it is the only true mood stabiliser. Put bluntly,
it works”
These papers and many more have
had good and immediate effects. Some
take a while. Recently I read a
paper written 60 years ago on drink-driving. The writer, Dr F S Hansman who had an interest in the
biochemistry of alcohol, had asked doctor-colleagues at what level of alcohol
consumption did they consider their driving to be impaired. “After two whiskies or less”, 90% of
them said. Dr Hansman found that
this corresponded to a blood alcohol of 0.04. It took 23 years before random breath testings using a
standard of 0.05 became law.
Going deep, beyond the published papers
Beside recording scientific
advances for immediate or deferred application, the MJA serves another splendid function. The one hundred years of the Journal comprise a superb record or memory of medical achievement
and of the people who made it happen.
Hilton Als, an American novelist,
theatre critic and staff writer at The
New Yorker, gave a commencement address at Columbia University in NYC on
May 21 this year to the graduating class of the School of the Arts. Als called
his address Ghosts in Sunlight. You
will find it in the July 10 issue of the New York Review of Books.
Als’ address takes its title from
an essay by Truman Capote published when he was 43. Capote’s essay, Als told the graduating students, describes
Capote’s experience on the set of the first film adaptation of his 1966
best-seller In Cold Blood. This was a
non-fiction novel about the 1959 murders of Herbert Clutter, a farmer from Holcomb, Kansas, his
wife, and two of their four children and the
murderers. Some of you may have
seen the recent version of the film.
Ghosts in sunlight
Capote found his encounter with actors
who were developing and forcefully portraying real characters from his book –
victims and murderers – deeply disturbing. Capote described how he felt he was watching ‘ghosts in
sunlight,’ as the characters he had written about had come back to life.
I doubt that we will find
anything quite as exciting as In Cold
Blood when we thumb through the archives of the Journal, but we can easily become absorbed reading the stories of
the science and clinical practice and health policy of past years and as the
characters come back to life in our imagination.
It can be disconcerting to
revisit those memories, to revive the ghosts in the sunlight of our moment. It can be disconcerting to read reviews
of the science of ailments such as obesity that have hardly changed in fifty
years and of other conditions, such as heart attack, that have changed
radically. Stories of sepsis in
the pre-antibiotic era are frightening.
Yet understanding what progress we have made or failed to make can
change us, change our views, and stimulate our imagination.
I hesitate to answer questions
from well-intentioned inquirers when they ask which papers in the Journal changed medical practice. It is a perfectly proper question, and I
have referred already to a list in the centenary issue of the Journal of the ten most cited papers.
But above and beyond those papers
with their tangible achievements and changes to how we do things, though, is the
marvellous artistic process, the alchemy, by which the stories and memories and
encounters contained in those hundreds of thousands of pages came about. This is the story behind the story, if
you will.
The hard work of science
Scientific achievement as
recorded in the MJA is always hard
won. I spent 1963 working with John Pollard on a neuroscience research project
at this university in the pharmacology department as part of a BSc(Med). We
were in search of the elusive transmitter substance between the optic nerve and
the lateral geniculate body in cats.
We did not find it. Indeed when
we presented our finding of a stimulant in extracts of sheep optic nerves that
made smooth muscles twitch and which we could not characterise and wondered if
this was the transmitter it didn’t work.
When we presented our findings at
a neuroscience conference, Sir John Eccles chaired our session and told the
audience that a colleague had found a similar substance in extracts from his
socks after a brisk game of tennis.
In returning to complete my
medical degree I recall opening Cecil’s textbook of medicine and thinking
“Every line in this book represents a research worker’s life.” The ghosts were clear in the
sunlight.
In the commencement address I
have been referring to, Hilton Als quotes Caribbean-born writer Jean Rhys who
said that: “she considered her writing to be the tiniest stream. But without
those streams, there would be no ocean, and if there is no ocean there is no
shore, and if there is no shore there is no place for our ghosts to gather in
the sunlight, those artistic forebears who wave us back to dry land when a
project seems beyond us and we lose our way, which is at least half the time.”
Neils deGrasse Tyson,
an astrophysicist and science
communicator at the Hayden Planetarium at the American Museum of Natural
History in NYC, in his TV series Cosmos
puts it another way: “Science is a
cooperative enterprise, spanning the generations. It's the passing of a torch
from teacher, to student, to teacher; a community of minds reaching back to
antiquity and forward to the stars.” It is the background culture and society
of medicine and medical research that you will find in the MJA that can be as informative and stimulating as individual papers
and articles.
Lessons from the ghosts
The ghosts of the practitioners
and scientists can change us, too, even now, even when we know that past
proposals were often wrong, that many of the lines of inquiry led nowhere
really. They can help us toward
humility; they can help us see how we, too, like the authors of the pages that
we turn, are creatures of our time.
They can make us tolerant of the
false starts, of the well intentioned failures, even of the pomposity of our
colleagues. (‘What’s good for
doctors’, opined the first editorial in the MJA,
‘is good for the community!’ Ahem!)
Ghosts can also frighten us: Capote writes about having to take a bottle
of scotch to bed to obliterate the ghosts of the characters of his book from
his consciousness.
When all of the issues from 1914
the MJA are digitised, as we plan them
to be when we have raised the $70K for that purpose (hint, hint), exploration
of the past and encounters with its ghosts in the sunlight will be a possibility
for all, anytime, anywhere.
Glimpsing the future
Today we celebrate a unique
record of medical memory in Australia that stretches back 100 years. This can be a day to renew our quest
for sounder medicine, for safer and better patient care, for new insights into
preventive possibilities and indeed to recognise and manage our own humanity
and frailty and proneness to error with gentle acceptance. The ghostly values can warm and correct
us and set our hearts racing.
The MJA has a bright future if we maintain our deep respect for
science, for imagination and humane concern for our patients, the profession, and
society and indeed for everyone in the organisation that contributes to the Journal. As we look to possible futures of the Medical Journal of Australia, we need to be open to the unbidden,
the unplanned, and the serendipitous that is never completely captured in a
strategic plan.
We are in the middle of the most
exciting explosion of knowledge in human history, with multiple media to
communicate and sift it. These dynamics will affect the form and style of the Journal and even its ethics. The format
of the Journal will need to become
more attuned to contemporary ways of communicating, the content more flexibly
responsive to the needs of our diverse readership through electronic tailoring
and streaming of content to them where and when they need it. Already we have a substantial presence
in the social media and this will grow.
To remain a trusted instrument of
record, where contemporary medical knowledge and reflection is written
carefully and history is recorded, that
will require all our skill and imagination about new and efficient ways of
communicating through multiple media.
That is what we at the Journal are committed to doing and we
thank all of you for your continuing support as we move into our next century.
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